PE Insights Episode 32 Dr Emma Powell – How PE and physical activity can support individuals with cystic fibrosis

PE insights podcast

Introduction

This PE Insights podcast episode, hosted by Nathan Walker, features a conversation with Dr Emma Powell, a knowledgeable and experienced Physical Education (PE) practitioner and lecturer. This episode focuses on how physical education and physical activity can enhance the quality of life for individuals with cystic fibrosis, a topic close to Emma’s heart.

Emma’s Educational Journey

Emma discusses her extensive background in physical education, starting from her early interest in PE, leading to her undergraduate degree in primary education specialising in PE. She progressed through various roles, including PE lead in primary schools and consultant for Birmingham City Council, before becoming a senior lecturer at Birmingham Newman University. Over the years, she has developed expertise in children’s physical activity, particularly in those with health conditions such as cystic fibrosis.

Importance of Physical Activity in Childhood

Emma emphasises the importance of physical activity for children, stating that humans, especially children, are naturally inclined to move. She shares personal anecdotes highlighting how children instinctively desire movement, which underscores the significance of fostering a love for physical activity from a young age.

Understanding Cystic Fibrosis and Its Impact

Cystic fibrosis is a genetic condition that affects the movement of salt and water in the body, leading to a buildup of thick, sticky mucus, primarily in the lungs. This condition necessitates daily treatments to clear mucus, and physical activity plays a crucial role in this process. Exercise helps in coughing up mucus, which is essential for individuals with cystic fibrosis to maintain respiratory health.

Research on Cystic Fibrosis and Physical Activity

Emma’s research, involving interviews with parents of children with cystic fibrosis, revealed that schools often unintentionally restrict these children’s access to the health benefits of physical activity. Due to the invisible nature of cystic fibrosis, schools may overlook the importance of physical activity for these children, despite its critical role in managing their condition.

Addressing the Needs of Children with Cystic Fibrosis

Emma advocates for greater awareness and support for children with cystic fibrosis in school settings, emphasising that physical activity is not just beneficial but necessary for their health. Schools should be proactive in facilitating daily physical activity to support these children’s well-being and educational outcomes.

Emotional Barriers in Physical Education

Children with cystic fibrosis face significant emotional challenges, particularly in physical education (PE). Many feel embarrassed due to scars from surgeries, feeding ports, or body image issues related to being underweight or, conversely, becoming overweight due to new treatments. These feelings often lead to avoidance behaviours, such as misbehaving to skip PE.

Inclusion Strategies

To support these children, schools should consider allowing all students to come to school in their PE kit, reducing the stigma of changing clothes. Additionally, it’s crucial for teachers to understand that cystic fibrosis manifests differently in each child. Regular consultation with healthcare professionals, parents, and the children themselves is essential to tailor PE activities to their specific needs.

Raising Awareness

Cystic fibrosis awareness in mainstream settings is vital, as these students typically do not have cognitive impairments and therefore attend regular schools. Educators should be informed about the unique needs of cystic fibrosis students, such as avoiding physical contact with other cystic fibrosis patients due to the risk of cross-infection.

Recommendations for PE Teachers

Teachers should ensure PE lessons are inclusive and beneficial for all students. This includes actively involving cystic fibrosis students in decisions about their participation, focusing on their needs without singling them out. PE activities should be dynamic and engaging, avoiding situations where children feel emotionally or physically excluded.

Key Messages for Educators

Teachers should liaise with parents and healthcare professionals, review individual healthcare plans, and ensure that physical activity remains a safe, inclusive, and enjoyable experience. Understanding that coughing in cystic fibrosis children is often beneficial, staying hydrated, and monitoring temperature regulation are also important considerations.

Conclusion

Effective support for children with CF in PE requires awareness, adaptability, and inclusivity. By addressing their physical and emotional needs, educators can help foster a lifelong love of movement, crucial for their health and well-being.Top of Form

About the Guest

Episode 32 is a conversation with Dr Emma Powell. Emma is a senior lecturer at Birmingham Newman University. Over the years, she has developed expertise in children’s physical activity, particularly in those with health conditions such as cystic fibrosis.

Listen and Connect

To listen to the full episode please follow these links to Spotify or Apple Podcasts.

If you would like to be a guest on the PE Insights Podcast please reach out by contacting us here or reach out to Nathan Walker via X at @NWalkerPE

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